Tag Archive | Amyotrophic lateral sclerosis
This is ALS
Normal? – Content? – Thankful? Last year, midway through ALS awareness month, I took those three letters and put them under a microscope for a close look. Normal popped up first because it has been fading daily from my world. While coping with ALS (Lou Gehrig’s disease) normal begs to be redefined each morning and […]
Tobii PCEye
The Tobii PCEye is the most advanced stand-alone eye control device on the market for operating a standard PC through eye gaze. Designed to dock under retail PC monitors, it operates with precision and effectively tracks nearly every user regardless of eye color, lighting conditions, environments or head movement. LAS VEGAS, CES 2013 — In […]
Medical Marijuana Introduced
Patient – Advocate raided hours later; On February 27, 2013, shortly after Sen. Jeff Clemens (D-Lake Worth) filed SB 1250, which would exempt seriously ill Floridians from criminal penalties for using marijuana with their doctors’ recommendations, the bill’s namesake – Cathy Jordan – was raided by the Manatee County Sheriff’s Department. Ms. Jordan cultivates and uses […]
Blue Skies & Magic Slates
If you are coping with ALS, and you follow events closely, you obviously heard of a new group that call themselves, Stem Cell Pioneers. These are brave folks who are willing to travel abroad to receive stem cell transplantations. A growing number of them are traveling annually to places such as Mexico, Portugal, China and […]
I Will Not Prepare to Die!
by Theresa Lee, “I am so grateful for the ALS in my life over the past eleven years. It has taken me on an amazing journey that I would have never thought possible or envisioned. When I received my diagnosis in 2002, it started me on a search into the realms of nutrition, herbal therapies, energetic […]
Avanir Gets Emotional
Neurodex – Nuedexta, whatever! Here’s the skinny. Avanir Pharmaceuticals has a plan. Take minced garlic, cook it down with heat, add melted butter, and label it Garlic Butter. This sensation is then poured into little plastic cups. Packaging begins with 60 cups to a carton. They are then shipped off to Poppa John’s Pizza for […]
Knockin’ On Heaven’s Door
Having grown up with rock legend Bob Dylan, Rob Borsellino always wanted to shake the hand of his favorite artist. With the help of a friend those hands finally met out west near a corn field. On April 21, 2006, legendary musicians Bob Dylan and Merle Haggard traveled to Des Moines, Iowa to perform a […]
I Heard It’s Hanukkah
Tis The Season that approaches rapidly, and yet so far out of reach for this fellow. They call it the season of giving, sharing, and the calendar points to one magical day of joyous celebration. Getting to that day is full of anxiety that could easily turn to panic as no one wants to be left […]
Drink Responsible
What is – Percutaneous Endoscopic Gastrostomy (PEG)? A PEG is a safe and effective way to provide food, liquids and medications (when appropriate) directly into the stomach. The procedure is done for patients who are having difficulty swallowing. Patrick O’Brien wants you to Drink Responsible this Season, cause you never know what Health issues may […]
Diagnosing ALS
Diagnosing ALS Tips The neurological examination is a “head to toe” examination of your body. The examination will start with the neurologist assessing your clarity of mind. He or she will look for problems in memory, behavior, or mood to determine your “mental status”. When the “mental status” part of the examination is complete, the […]
Disability Activists, Assisted Suicide and the Land of Oz
November 1, 2011 – the anticipated/dreaded Dr. Oz show on assisted suicide aired in most places, although syndicated shows such as Dr. Oz often play out on different dates in different locations. Disability activists Nadina LaSpina, Danny Robert, Ari Ne’eman, Julie Maury, Hope Derogatis and Bill Peace were all in the audience. Danny Robert and […]
One Size Fits All
Are patients with ALS being package as “One Size Fits All”? As you may have already experienced, ALS will be the worst three letters that your healthy body has ever heard. ALS will be stamped and confirmed on all your documents until your final days. In the months ahead you will have hundreds of ALS […]
“K-ALS”
World Series watchers may have seen the “K ALS” (“strike out ALS”) written on Boston Red Sox pitcher Curt Schilling‘s shoe. Schilling and his wife, Shonda, have devoted themselves to raising awareness about ALS (amyotropic lateral sclerosis, or Lou Gehrig’s disease). Inspired by a meeting with an individual with ALS in 1992, they have helped […]
Stress-Strain-Adaptation
Many years ago I enrolled in a class that studied Jewish civilization through their 5000 years of existence. The three points of the triangle have been forever present in their existence. I find these three points of a triangle to be helpful in explaining the existence of ALS. Be it, 5000 years or 140 years, […]
