Rambling Man of ALS

Healthy Barbs

Rambling Man of ALS — Sun, 12 May 2013 15:34:42 +0000

Barbara Brenner 1951-2013

Posted on May 11, 2013 by bbzinger

Barbara Brenner passed away peacefully at home on Friday evening.

Funeral services will be held in San Francisco, with burial in Fort Bragg. Arrangements are pending and will be posted Sunday on Barbara’s blog, Healthy Barbs (barbarabrenner.net), our Caring Bridge site (caringbridge.org, barbarabrenner community), and Barbara’s Facebook page.

Contributions in lieu of flowers may be made to the Barbara Brenner Rapid Response fund at Breast Cancer Action, 55 New Montgomery Street, Suite 323, San Francisco, CA 94105 (bcaction.org).

Thank you for all your love and support.

I Ramble … Barbara, I’ll miss you!

Filed under: "Out of The Blue", ALS, ALS - Research

“Behind Blue Eyes”

Rambling Man of ALS — Sat, 11 May 2013 20:39:01 +0000

I Ramble … Piss on ALS! Who’s next

Filed under: "Out of The Blue", ALS, ALS - Research, Art, Did You Know Tagged: ALS, Amyotrophic lateral sclerosis, Conditions and Diseases, Lou Gehrig's disease

This is ALS

Rambling Man of ALS — Wed, 01 May 2013 14:56:30 +0000

Normal? – Content? – Thankful?

Last year, midway through ALS awareness month, I took those three letters and put them under a microscope for a close look. Normal popped up first because it has been fading daily from my world. While coping with ALS (Lou Gehrig’s disease) normal begs to be redefined each morning and I’m not alone. As science continues to search for the ALS triggers, they continue to attack veterans, the young, the old, male and female. As we wait for a clue and a cure, all I can do is send out SOS’s when possible and raise my voice one keystroke at a time.

As muscles waste, ALS forces your body into a small box of Content. There are fingernails uncut and itches unscratched. Towards the end of this complacent journey we are left with the use of two objects, eyes and mind. Most ALS patients call this a blessing to examine the past and gaze the future. Without ALS awareness, people may think we’re normal but many will never understand involuntary daily content.

Thankful, of course I’m Thankful. With ALS you are going to require special care. My wife serves as my caregiver and forever thankful to her. I’m thankful she feeds me, brushes my teeth, baths me, shaves me, and combs my hair. When a spouse becomes a caregiver, true love is displayed most when they have no objections in their new role. I’m thankful for those simple one directional hugs, because I will always have that sense of feel.

So, I type onward with one finger, feeling sort of normal, somewhat content, but evermore thankful.

Filed under: ALS, ALS - Research Tagged: ALS, ALS Awareness Month, Amyotrophic lateral sclerosis, Conditions and Diseases, Health, Lou Gehrig, Neurodegeneration, Neurological Disorders

Devoted to the End

Rambling Man of ALS — Fri, 12 Apr 2013 15:01:34 +0000

Filed under: ALS, Did You Know Tagged: Amyotrophic lateral sclerosis, Conditions and Diseases, Health care, Medicare, Neurological Disorders

Tobii PCEye

Rambling Man of ALS — Sun, 17 Mar 2013 16:59:14 +0000

The Tobii PCEye is the most advanced stand-alone eye control device on the market for operating a standard PC through eye gaze. Designed to dock under retail PC monitors, it operates with precision and effectively tracks nearly every user regardless of eye color, lighting conditions, environments or head movement.

LAS VEGAS, CES 2013 — In the near future, you’ll be able to navigate through Windows 8 using little more than your eyes. The new Rex is small enough to sit on your laptop between the monitor and keyboard. It can also comfortably attach to the bottom of most desktop monitors.

Filed under: ALS, Did You Know Tagged: ALS, Amyotrophic lateral sclerosis, Conditions and Diseases, Eye tracking, Health, Lou Gehrig's disease, Personal computer, Rex, Tobii Technology, Windows 8