Are patients with ALS being package as “One Size Fits All”? As you may have already experienced, ALS will be the worst three letters that your healthy body has ever heard. ALS will be stamped and confirmed on all your documents until your final days. In the months ahead you will have hundreds of ALS questions. Like myself, it will probably take about two years to sift through all the data. You will soon learn that ALS is spoken daily in general terms without regard to specific details.
ALS is complicated and the wait continues for any reasonable solution. For example, Medpedia on Amyotrophic Lateral Sclerosis has the following description of Familial ALS (10% of ALS cases). There are many different types (1,2,4,8), but mostly they involve four age groups with different progression rates. Research has identified different genes, but the early stages and death of motor neurons as related to atrophy, is still unclear.
Sporadic ALS (90% of ALS cases) carries less explanations while the outcome is the same. We do know that sporadic ALS can attack either sex at any age. To date there are 27 direct categories of sporadic ALS. I can’t spell nor can I pronounce them, but whenever a patient is diagnosed with something unusual or a different detail is noticed, research gives it a new title.
I am positive that your initial first two years from diagnosis were or soon will be a traumatic event. More than ever, in our quest for answers our minds continue to be engaged with our dreadful ALS status. Last year, head trauma was introduced as something that mimicked ALS in the case of the first advocate, Lou Gehrig himself. The one detail that may be a clue, is that, after his head trauma occurred, Mr. Gehrig (The Iron Horse) continued to play through pain for five years. What was his mind trying to tell his body, and how was the body reacting?
So, we learn that ALS is all over the charts, and clearly does not belong to the slogan of “One Size Fits All”. I realize that ALS belongs to the neurology family, but I have one question. What if? What if there was a way of removing the trauma that may be responsible for the ALS situation. Personally I have found it possible for one to manage or quiet the mind going through this journey? Now, I know this may be a stretch, but is it really possible to reverse our situation? It has been done before, and while the ratio is small, there are those that have decided to think outside this package.
One such person is Evy McDonald, R.N., M.S., M.Div. Evy is one of the first patients to have reversed this normally fatal disease. Her journey serves as hope and inspiration to others dealing with serious health issues. It may be to your advantage or interests in giving serious thought to what Evy has to say in her published articles. Find those articles at the American Holistic Health Association.
Being good to your ALS organization, and raising research dollars may be important, but that should be the smallest part of your life. Take it from this ALS patient, you have more than enough time to be good to yourself. Find your size, possibly live better, live longer.