Today is Rare Disease Day and organizations and individuals across the country — and around the world — are bringing much needed attention to ALS and other “orphan diseases.” As we educate the public about this disease and its devastating impact on thousands of Americans and their families, we urge you to not just speak out, but take action by joining the fight against ALS in our nation’s Capital.
Go to the Advocacy Day section of The ALS Association website, www.alsa.org/advocacy/advocacy-day/ to learn more about the conference, view photos and read highlights from past conferences and register TODAY!
I ramble … Today ALS is a rare disease. Tomorrow it will be on a shelf. Pack up your soapbox and head for Washington DC. Tell Congress you are not rare, tell the Senate you are not rare, tell ALSA you are not rare, tell the world – ALS is not rare!