I Ramble … Piss on ALS! Who’s next
Normal? – Content? – Thankful?
Last year, midway through ALS awareness month, I took those three letters and put them under a microscope for a close look. Normal popped up first because it has been fading daily from my world. While coping with ALS (Lou Gehrig’s disease) normal begs to be redefined each morning and I’m not alone. As science continues to search for the ALS triggers, they continue to attack veterans, the young, the old, male and female. As we wait for a clue and a cure, all I can do is send out SOS’s when possible and raise my voice one keystroke at a time.
As muscles waste, ALS forces your body into a small box of Content. There are fingernails uncut and itches unscratched. Towards the end of this complacent journey we are left with the use of two objects, eyes and mind. Most ALS patients call this a blessing to examine the past and gaze the future. Without ALS awareness, people may think we’re normal but many will never understand involuntary daily content.
Thankful, of course I’m Thankful. With ALS you are going to require special care. My wife serves as my caregiver and forever thankful to her. I’m thankful she feeds me, brushes my teeth, baths me, shaves me, and combs my hair. When a spouse becomes a caregiver, true love is displayed most when they have no objections in their new role. I’m thankful for those simple one directional hugs, because I will always have that sense of feel.
So, I type onward with one finger, feeling sort of normal, somewhat content, but evermore thankful.
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Patient – Advocate raided hours later;
On February 27, 2013, shortly after Sen. Jeff Clemens (D-Lake Worth) filed SB 1250, which would exempt seriously ill Floridians from criminal penalties for using marijuana with their doctors’ recommendations, the bill’s namesake – Cathy Jordan – was raided by the Manatee County Sheriff’s Department. Ms. Jordan cultivates and uses marijuana to treat Lou Gehrig’s disease. If you live in Florida, please email your legislators today and ask them reject this madness by supporting medical marijuana; they’d join 70% of Floridians who do so as well.
The Cathy Jordan Medical Cannabis Act, which has also been introduced in the House by Rep. Katie Edwards (D – District 98), would allow patients with certain qualifying medical conditions, or their officially designated caregivers, to possess up to four ounces of marijuana and grow up to eight marijuana plants. It would require the Department of Business and Professional Regulation to license and regulate medical marijuana dispensaries and cultivation facilities. Florida should stop treating the sick and suffering like criminals; ask your legislators to support SB 1250 and HB 1139.